Luyini Ucwaningo lwe-BASIS KIDS?
Ucwaningo lwe-BASIS KIDS luhlola umuthi wocwaningo wabafana abane-hemophilia A noma B. Ucwaningo luzobheka ukuphepha komuthi ocwaningayo nokuthi wenzani ngaphakathi emzimbeni. Abacwaningi bafuna ukubona ukuthi lo muthi wocwaningo ungakuvimbela yini ukopha okuvame ukwenzeka kubantu abane-hemophilia.
Umuthi wocwaningo awukona ukwelashwa kokubuyisela izinto. Ivimba into etholakala ngokwemvelo emzimbeni evimba inqubo yokujiyisa. Ngokwenza lokhu, umuthi wocwaningo ungaholela ekwandeni komsebenzi wokujiyisa.
Yazi u-Charlie nomama wakhe, u-Hannah, njengoba bekhuluma ngolwazi lwabo nge-hemophilia kanye nokubamba iqhaza ezivivinyweni zomtholampilo.
Ubani ongabamba iqhaza?
Ukuze ucatshangelwe ocwaningweni, ingane yakho kufanele:
- Ibe ngowesilisa ongaphansi kweminyaka engu-18 ubudala
- Ibe ne-hemophilia A enzima kakhulu noma i-hemophilia enzima kakhulu ukuya kokuqina, ene-inhibitors noma engenawo
- Ihlangabezane nezidingo ezengeziwe, njengoba kunqunywa inqubo yokuhlola
- Abanye abantu bakha ama-inhibitors ukuze bathathe indawo yokwelapha, okuyivimbela ukuthi isebenze futhi yakhe ihlule. Lokhu kwenza kube nzima kakhulu ukumisa ukopha. Umuthi wocwaningo ohlolwayo awuthintwa ama-inhibitors.
Kwenzakalani
phakathi nocwaningo?
Ingane yakho izoba socwaningweni cishe izinyanga eziyi-14. Kulo lonke ucwaningo, ingane yakho izovakashelwa endaweni kanye nezingcingo nethimba locwaningo ukuhlola impilo yayo.
Uma ingane yakho isiqedile ucwaningo, ingase ibe nokukhetha ukuqhubeka idla umuthi wocwaningo isikhathi eside njengengxenye yocwaningo oluhlukile. Ungaxoxa ngalokhu nodokotela wocwaningo wengane yakho uma uthanda.
Imvume
Udokotela wocwaningo uzoqale abuyekeze Ifomu Lemvume Enolwazi nawe, eliqukethe yonke imininingwane yocwaningo. Thatha sonke isikhathi osidingayo ukucabangisisa futhi ubuze noma yimiphi imibuzo wena nengane yakho eninayo. Uma uvuma ukuthi ingane yakho ijoyine, uzonikeza imvume yakho ngokusayina ifomu. Ingane yakho ingase futhi isayine ifomu elifanayo elibizwa ngokuthi Ifomu Lokuvuma isho ukuthi iyavuma ukubamba iqhaza ocwaningweni.
Ukuhlola
Ukuze ubone ukuthi ingane yakho iyafaneleka yini kulolu cwaningo, udokotela wocwaningo uzobuza imibuzo mayelana nempilo yengane yakho, umlando wezokwelapha, kanye nemithi eyithathayo. Ingane yakho izophinde ihlolwe ngokomzimba kanye nokuhlolwa okuthile, okuhlanganisa ukuhlolwa kwegazi nomchamo. Isikhathi sokuhlolwa cishe yinyanga eyodwa
Ukwelashwa Kocwaningo
Zonke izingane ezifanelekela ucwaningo zizothola umuthi wocwaningo izinyanga eziyi-12. Ngalesi sikhathi, ingane yakho izophinde ibe nokuvakasha okungu-9 endaweni kanye nezingcingo ezi-5 nethimba locwaningo ukuhlola impilo yayo. Okunye kwalokhu kuvakasha kungase kwenzeke ekhaya lakho uma uthanda futhi uma imithetho yendawo ikuvumela.
Landelela
Uma ingane yakho ikhetha ukungaqhubeki nokuthatha umuthi wocwaningo njengengxenye yocwaningo oluhlukile, udokotela wocwaningo uzoxhumana nawe ukuze ahlole impilo yengane yakho ezinsukwini ezingama-30 ngemuva komthamo wakhe wokugcina womuthi wocwaningo.
Unikezwa kanjani umuthi wocwaningo?
Nokwelashwa ngomuthi ojiyisa igazi, enikezwa ngokufakwa okuvamile (kancane kancane emthanjeni), umuthi wocwaningo unikezwa njengomjovo (udutshulwe) endaweni enamafutha ngezansi kwesikhumba kanye ngesonto.
Umjovo wokuqala uzonikezwa endaweni yocwaningo. Eminye imithamo izonikezwa ekhaya, noma esizeni uma uthanda.
- Qaphela: Lapho ingane yakho iwuthola khona umjovo kungase kuncike ekutheni usebenzisa isirinji esele igcwaliswe noma ipeni.
- Indawo futhi izoncika ekutheni ingane yakho iyazijova yini noma uma umnakekeli noma udokotela wocwaningo enikeza umjovo.
Yiziphi izinhlobo zokuhlolwa ingane yami ezoba nazo ekuvakasheleni isifundo?
Ekuvakasheni kocwaningo, ingane yakho izohlolwa ukuhlola impilo yayo. Ngezansi kukhona ukuhlolwa okuzokwenziwa ingane yakho. Ngeke abe nazo zonke izivivinyo kukho konke ukuvakasha.
Izimpawu Ezibalulekile
Ukuhlolwa Komzimba
Ukuhlola Amalunga
Ukuhlolwa Kwegazi
Ukuhlola Umchamo
Umsebenzi Wenhliziyo (ECG)
Uhlu lwemibuzo
Ingabe kukhona okunye okuzodingeka sikwenze?
Uzonikezwa idivayisi kagesi ephathwa ngesandla njenge-smartphone ukuze uqoqe ulwazi phakathi nocwaningo, okuhlanganisa:
- Noma yikuphi ukopha ingane yakho enakho
- Noma yimiphi imithi esetshenziselwa ukwelapha ukopha kwengane yakho
- Uma ingane yakho ithola umjovo wayo wocwaningo
Thola Isizinda Sokufunda
Ngezansi kukhona uhlu lwezikhungo zokufunda endaweni yangakini: